Health disparities in rheumatic diseases: Part II,

Description:

This issue of Rheumatic Disease Clinics, guest edited by Dr. Candace Feldman, is Part II of a two-part issue covering Health Disparities in Rheumatic Diseases. This issue is one of four selected each year by series Consulting Editor, Dr. Michael Weisman. Topics discussed in this issue include, but are not limited to: Disparities in Lupus Care and Outcomes among U.S. Medicaid Beneficiaries, Understanding Risk Factors for Poor Outcomes in a Multiethnic Longitudinal Cohort, Impact of Psychosocial Factors on RA and Lupus Health Disparities, Racial/ethnic and geographic disparities in knee and hip osteoarthritis, Racial/ethnic Disparities in Osteoarthritis Management, Challenges and Strategies to Achieve Equitable Rheumatologic Care Across the World, Strategies to Reduce Disparities, Understanding and Addressing the Provider Biases and the Lack of Diversity in Lupus Clinical Trials, Community-engaged Research: Lupus Conversations, Leveraging Telemedicine as an Approach to Address Rheumatic Disease Health Disparities, and Understanding the Role and Challenges of Patient Preferences in Disparities in Rheumatic Disease Care.

Table of Contents:

Rheumatic Disease Clinics of North America

Foreword

Preface

Racial/Ethnic, Socioeconomic, and Geographic Disparities in the Epidemiology of Knee and Hip Osteoarthritis

Key points

Introduction

Knee osteoarthritis

Hip osteoarthritis

Summary

Clinics care points

Racial/Ethnic and Socioeconomic Disparities in Osteoarthritis Management

Key points

Introduction

Osteoarthritis education

Dietary weight management

Exercise/physical therapy

Pharmacologic: nonsteroidal antiinflammatory drugs

Pharmacologic: opioids (not recommended)

Intra-articular steroid injections

Total joint replacement use

Total joint replacement outcomes

Summary

Disparities in Lupus and Lupus Nephritis Care and Outcomes Among US Medicaid Beneficiaries

Key points

Introduction

Burden of systemic lupus erythematosus and lupus nephritis among Medicaid beneficiaries

Access to high-quality systemic lupus erythematosus care and medication adherence in the Medicaid systemic lupus erythematosus population

Disparities in adverse outcomes among systemic lupus erythematosus patients enrolled in Medicaid

Summary

Understanding Risk Factors for Poor Outcomes in a Multiethnic Longitudinal Cohort: The LUMINA (Lupus in Minorities: Nature vs. Nurture) Experience (LUMINA LXXXII)

Key points

Introduction

Disease activity

Damage accrual

Predictors of specific organ system damage

Patient-reported outcomes

Mortality

Summary

Clinics care points

The Contribution of Genetics and Epigenetics to Our Understanding of Health Disparities in Rheumatic Diseases

Key points

Introduction

Population genetics and the role of natural selection

Genetics of rheumatic diseases: the need for genome-wide association studies in diverse populations

Examples of genetic basis of disease risk among populations

Systemic lupus erythematosus

Kidney disease in systemic lupus erythematosus and APOL1

Systemic sclerosis and HLA-DPB1∗13:01

Spondyloarthritis and HLA-B27

Epigenetics and health disparities in rheumatic disease

Evidence of epigenetic dysregulation in autoimmune rheumatic disease

Epigenetics in relationship to genetic ancestry and race

Summary

Understanding the Role and Challenges of Patient Preferences in Disparities in Rheumatologic Disease Care

Key points

Importance of shared decision making and assessing patient preferences

Eliciting preferences

Race/ethnic differences in treatment preferences

Decision aids and their use in minority patients

Challenges in shared decision making and eliciting preferences

Summary

Clinics care points

Leveraging Telemedicine as an Approach to Address Rheumatic Disease Health Disparities

Key points

Introduction

Overview of telehealth modalities

Summary of evidence in telerheumatology

Differentiating phases of clinical care in telerheumatology

Telemedicine presenters

Disease-specific applications of telerheumatology

Mobile health and remote patient monitoring

Telerheumatology and access to care

Workforce impact of telerheumatology

Barriers to widespread adoption

Summary

Clinics Care Points

Community-Engaged Research: Leveraging Community-Academic Partnerships to Reduce Disparities and Inequities in Lupus Care

Key points

Why is it important to involve communities in research?

Spectrum of community-engaged research

Community-based participatory research (CBPR)

Evolution and impact of community-academic partnerships (CAP)

Evaluation of community-academic partnerships

Challenges of community-academic partnerships

Community-academic partnership example: MONARCAS

Community-academic partnership example: Lupus Conversations

Summary

Health Disparities in Rheumatic Diseases: Understanding Global Challenges in Africa, Europe, Latin America, and Asia and Proposing Strategies for Improvement

Key points

Africa

Europe

Latin America

Asia