Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities

 

Description:

This fully updated and expanded second edition of a successful book reviews  the most important neuropsychological measures currently used in the assessment of dementia by the principal clinicians and researchers associated with the tests. Several clinicians and research workers, who have been at the forefront in developing the tests in question, provide clear practical guidance on the scope of each test, use in research, as well as an analysis of their accuracy and limitations. The international contributors have brought together a concise and practical guide on the role of neuropsychological testing to support the dementia assessment. Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities, Second Edition is an essential reference for all those working in the field of dementia and intellectual disabilities.

 

Table of Contents:

 

Chapter 1: Overview of the Diagnostic Instruments for Dementia in People with Intellectual Disa

Introduction

Informant-Based Tests

Dementia Questionnaire for Persons with Learning Disabilities (DLD) [12]

Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID) [13]

Dementia Scale for Down Syndrome (DSDS)

Early Signs of Dementia Checklist (ESDC)

The Short Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)

Subject-Based Assessments

The Prudhoe Cognitive Function Test (PCFT)

The Test for Severe Impairment (TSI)

Severe Impairment Battery (SIB)

The Adaptive Behaviour Dementia Questionnaire (ABDQ)

Cambridge Cognitive Examination (CAMCOG)

The Dyspraxia Scale

The Short Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)

Test Batteries

Neuropsychological Assessment of Dementia in Adults with ID

Working Groups Battery

Psychological Tools

Commonly Used Instruments Administered to Informants

Commonly Used Instruments Administered to ID Persons

Summary

References

Chapter 2: Issues in Dementia Assessment Methods

Introduction

Worldview/Prevalence Implications: Adults with Down Syndrome

Schedule for Assessment

Purpose of Assessment

Characteristics of Individuals Being Assessed

Intellectual Level

Age

Etiology of ID

Gender

Care Setting

Methods to Address Individual Differences

Homogeneous Groups

Stratified Sample

Informant Report or Direct Assessment of Performance

Informant Report

Direct Assessment

Evaluation of Assessment Scales and Techniques

Independent/External Validation Criterion

Sensitivity, Specificity, and Predictive Value

Reliability

Group Comparisons

Evaluation and Stages of Dementia

Evaluation and Strength/Weakness Profile

Evaluation of Scales Across Studies

Clinical Usefulness of Dementia Assessment Scales and Techniques

Summary

References

Chapter 3: The Dementia Questionnaire for People with Learning Disabilities

Introduction

Background

DMR (DLD) Designing Process

First Studies, Leading to Publication of the Final Version

Psychometric Properties

Reliability

“Gold Standard”: Expert Diagnosis

Sensitivity and Specificity

Diagnostic Criteria

Judgment by Committee on Test Affairs Netherlands

Applications of the DMR (DLD)

Dementia

Early Detection

Screening Instrument and Effect Instrument

Repeated or Single Completion

Criteria for Persons to Be Tested

Who Answers the Questions?

Who Interprets the Answers?

Directions for Diagnostic Use

Rating

Other Studies of the DMR (DLD)

The DMR (DLD) in Diagnostic Test Batteries

Evaluations of the DMR (DLD)

The DMR in Intervention Studies

Summary

References

Chapter 4: Gedye Dementia Scale for Down Syndrome

Introduction

Background on the Development of the Scale

The Dementia Scale for Down Syndrome

Screening for Conditions That Cause Reversible Dementia or Mimic Dementia

Reversible Cognitive Deterioration

Conditions That Can Mimic Cognitive Decline

Psychometric Properties of the DSDS

Reliability and Validity Studies

The DSDS in Neuropsychological Assessment

Published Studies That Used the DSDS

Advantages and Disadvantages of the DSDS

Summary

References

Chapter 5: The Dyspraxia Scale for Adults with Down Syndrome

Introduction

Rationale

Background

Dyspraxia Scale Construction

Description and Administration of the Dyspraxia Scale for Adults with Down Syndrome

Test Materials

Detailed Scoring of the Dyspraxia Scale for Adults with Down Syndrome

Scoring Sheet

Detailed Administration

Part 1: Psychomotor Skills

Part 2: Apraxia

Part 3: Body Parts/Coin Task

Psychometric Properties of the Dyspraxia Scale for Adults with Down Syndrome

Validity and Reliability

Validity

Test–Retest Reliability

Test–Retest Reliability Over 3 Years

Split-Half Reliability

Internal Consistency: Cronbach’s Alpha

Factor Analysis

Standardization: Normative Sample

Standardization Sample: Part and Total Correlations

Review of Published Research Studies with the Dyspraxia Scale for Adults with Down Syndrome

Brief Praxis Test

Future Developments

Summary

References

Chapter 6: Adaptive Behavior Change, Mild Cognitive Impairment and Dementia in Down Syndrome: Case

Introduction

Down Syndrome

Dementia and Alzheimer’s Disease

Alzheimer’s Disease and Dementia in Adults with Down Syndrome

Classification of Dementia Status

Classification of Dementia Status in Adults with Down Syndrome

Functional Decline and Adaptive Behavior

Background of the Adaptive Behavior Scale

Research Studies

The ABS and Age-Associated Group Differences in Adaptive Behavior

The ABS and Age-Associated Declines in Adaptive Behavior

The ABS and Dementia Classification

The ABS and Dementia: The Aging Research Program

The ABS and Dementia Classification

Summary

References

Chapter 7: The Cambridge Examination for Mental Disorders of Older People with Down’s Syndrome

Background

Rationale for the Development of the CAMDEX-DS

Development and Use of the CAMDEX in the General Elderly Population

Modification of the CAMDEX Schedule for Use with Adults with Down Syndrome

Modification of the CAMDEX Informant Interview

Modification of the CAMCOG

Validity and Reliability of the CAMDEX-DS

Validity and Reliability of the CAMDEX-DS Informant Interview as an Aid to Dementia Diagnosis

Psychometric Properties of the CAMCOG-DS

Using the CAMDEX-DS

Administration of the Assessment Schedule

Diagnostic Process

Guidance for Postdiagnosis Intervention

Review of Research Studies Using the CAMDEX-DS

Pros and Cons of the CAMDEX-DS

Clinical Experience

Summary

References

Chapter 8: The Test for Severe Impairment

Introduction

Development of Test for Severe Impairment

Validity and Reliability

Methods

Measures

Calculation of Rate of Change

Results

Discussion

Summary

Case Vignette

References

Chapter 9: The Cued Recall Test: Detection of Memory Impairment

Introduction

Background

Identification of Memory Impairment in Adults with Dementia in the General Population

Age-Associated Memory Impairment and Down Syndrome

Diagnosis of Early-Stage Dementia in Adults with Down Syndrome

Early Identification of Significant Memory Impairment in Adults with Down Syndrome

Measures of Episodic Memory in Adults with Down Syndrome

Procedure

Participant Characteristics

Psychometric Properties

Reliability of Different Versions of the Test

Reliability of Retesting with the Same Test Version

Diagnostic Efficacy

Sensitivity and Specificity

Mild Cognitive Impairment

Longitudinal Data

Normal Aging and Free Recall

Evaluation of Two Trials

Findings from Recent Studies

Pros and Cons of Cued Recall Test

Summary

References

Chapter 10: The Adaptive Behavior Dementia Questionnaire (ABDQ)

Introduction

Background

Development of the ABDQ

Sample Group

Assessments

Development of Questionnaire

Identification of Significant ABS Items

Composing the Questionnaire

Questionnaire Analysis

Psychometric Properties of ABDQ

Interrater Reliability

Validity

Face Validity

Split-Half Validity

Research Studies

Future Issues

Summary

References

Chapter 11: National Task Group Early Detection Screen for Dementia (NTG-EDSD)

Introduction

Screening

The National Task Group

The National Task Group Early Detection Screen for Dementia (NTG-EDSD)

Case Studies

Applications

Commentary

References

Chapter 12: The Rapid Assessment for Developmental Disabilities

Introduction

Rationale

Development of the RADD

Materials Needed for Administration of the RADD

Psychometric Properties

Validity

Reliability

Factor Analysis

Sensitivity and Specificity

Use of the RADD in Neuropsychological Assessment

Use of the RADD in Dementia Assessment

Interpretation of Results for Down Syndrome and Dementia

Future Application of the RADD for Cognition and Dementia in Down Syndrome

References

Chapter 13: The Severe Impairment Battery

Introduction

Background to the Severe Impairment Battery (SIB)

Evaluation of the SIB for Use with People with Down Syndrome

Studies Using the SIB with People with DS and ID

Test Selection: Strengths and Limitations of the SIB When Used with People with ID

Case Vignettes

Vignette 1: James: Mild Cognitive Impairment (MCI) [62]

Vignette 2: Patrick: Alzheimer’s Disease

Vignette 3: Alice: Non-Dementia

Summary

References

Chapter 14: Strengths of Previous Work and Future Challenges

Introduction

Strengths of Previous Work

Identification of Onset of Decline

Monitoring Progression

Differential Diagnosis

Breadth of Functional Areas Assessed

Administration Techniques

Source of Information

Flexibility of Instructions

Scoring

Evaluation Methods

New Issues Identified

Evaluation Criteria for Tools Used at Different Stages of Practice

Changes in Validated Instruments

Baseline Functioning Issues

Mild Neurocognitive Disorder, Healthy Aging, and Diagnostic Consensus

Collaboration

Future Challenges and Directions

Longitudinal Research

Interdisciplinary Expertise

Funding

Conclusions

References

Appendix A: Questions on Clinical Usefulness of Scales, Tests, and Techniques

Appendix B: Dementia Questionnaire for People with Intellectual Disabilities

Appendix C: Scoring Sheet for the Dyspraxia Scale for Adults with Down Syndrome

Appendix D: Part One Domain I. Independent Functioning

Appendix E: Memory and Orientation

Appendix F: Case Studies

Case Study 1: John

Background/Best Level of Functioning

Changes Reported by Carer

Everyday Skills

Other Cognitive Skills

Personality/Behavior

Memory

Self-Care

Mental Health

Physical Health

Case Study 2: Michael

Background/Best Level of Functioning

Changes Reported by Carer

Everyday Skills

Memory

Other Cognitive Skills

Personality/Behavior

Self-Care

Mental Health

Physical Health

Case Study 3: Mary

Background/Best Level of Functioning

Changes Reported by Carer

Everyday Skills

Memory

Other Cognitive Skills

Personality/Behavior

Self-Care

Mental Health

Physical Health

Appendix G: Test for Severe Impairment

Appendix H: The Adaptive Behavior Dementia Questionnaire (ABDQ)

Appendix I: NTG-EDSD

References

Dr. Arthur Dalton Obituary

Index

 

An aparitie	2018
Autor	Prasher
Dimensiuni	15.49 x 1.98 x 23.5 cm
Editura	Springer
Format	Softcover
ISBN	9783319617190
Limba	Engleza
Nr pag	328