Story Within. Personal Essays on Genetics and Identity
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Autor: Boesky Amy
Editura: Johns Hopkins University Press
Limba: Engleza
Nr. pagini: 256
Coperta: Paperback
Dimensiuni: 22,9x15,2 cm
An aparitie: November 2013
In "The Story Within", authors share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity – to deepen debate and generate questions. Whether they or their families are affected by Huntington's disease, Alzheimer's disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia, their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.
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An aparitie | November 2013 |
Autor | Boesky Amy |
Dimensiuni | 22,9x15,2 cm |
Editura | Johns Hopkins University Press |
Format | Paperback |
Limba | Engleza |
Nr pag | 256 |
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1,13000 lei 1,07000 lei
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